Until I Say Goodbye: a book About Living
Leighanna says:
I found the author's attitude towards her diagnosis of ALS to be very inspiring and I think it's amazing that she wrote the whole book using one finger on her iPhone. But this is not The Diving Bell and the Butterfly. It seems like maybe the book was published too quickly (maybe to get it out before she died?)and it could have been edited more. I found it confusing in parts and it was hard to figure out the sequence of events.
scam123 says:
This book has a lot to say about illness, ...dying, and the decision to love. Her bucket list and mine are very different (permanent make-up would be the furthest thing from my mind), but I would hope that in her place I would give the same thought to how to spend time with those I cared about most. I also was touched to read about her husband and the way he cared for her, eventually needing to set her on the toilet and clean her afterwards. That is true, sacrificial love in its purest form.I just looked up her bio to see if somehow she could still be alive but she passed away last year. The obituary did list the amount of the book deal: $2.3 million, and there was a 7-figure movie deal as well. I daresay she deserves every penny. She is an excellent writer, and thinking of her tap-tap-tapping her story out on a phone touchpad with her one good finger is inspiring to me. I do not think there are many who would not just slip into despair far sooner.Of course I also like the message about the value of life, even in the face of terminal illness. It is obvious that hastening her death would have been the wrong thing to do, for herself, her husband, her children, her friends and family, and her readers. Even life with poor quality is still valuable. She wrote the afterword using a device that could read the letters she pointed to with her nose. Even without any ability to speak, she still had a voice.MoreLess
I found the author's attitude towards her diagnosis of ALS to be very inspiring and I think it's amazing that she wrote the whole book using one finger on her iPhone. But this is not The Diving Bell and the Butterfly. It seems like maybe the book was published too quickly (maybe to get it out before she died?)and it could have been edited more. I found it confusing in parts and it was hard to figure out the sequence of events.
scam123 says:
This book has a lot to say about illness, ...dying, and the decision to love. Her bucket list and mine are very different (permanent make-up would be the furthest thing from my mind), but I would hope that in her place I would give the same thought to how to spend time with those I cared about most. I also was touched to read about her husband and the way he cared for her, eventually needing to set her on the toilet and clean her afterwards. That is true, sacrificial love in its purest form.I just looked up her bio to see if somehow she could still be alive but she passed away last year. The obituary did list the amount of the book deal: $2.3 million, and there was a 7-figure movie deal as well. I daresay she deserves every penny. She is an excellent writer, and thinking of her tap-tap-tapping her story out on a phone touchpad with her one good finger is inspiring to me. I do not think there are many who would not just slip into despair far sooner.Of course I also like the message about the value of life, even in the face of terminal illness. It is obvious that hastening her death would have been the wrong thing to do, for herself, her husband, her children, her friends and family, and her readers. Even life with poor quality is still valuable. She wrote the afterword using a device that could read the letters she pointed to with her nose. Even without any ability to speak, she still had a voice.MoreLess
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